📣 General Welcome Space

👋 I’m Baily and I am so excited to have found this community!

I had a T1-L3 fusion 18 years ago at 21 after being diagnosed around 10. Bracing was never considered because at the time I was dealing with a severe ED. Post op I was dealing with a lot of pain from the hardware and had very little medical support. My then boyfriend (now husband) suggested that strengthening my core would take a bit of a load off my back and help me move with less pain. As someone who’d never been a fan of physical movement I reluctantly tried it out.

Now I mange to move my body daily in ways I’d never though possible - reformer twice a week and Pilates and strength building 3-4 times.

My biggest hang up is still my scars - on top of the regular surgical scarring I have marks from…

Hi everyone! So cool to see a community for scoliosis. I was diagnosed at around 6 or 7 years old I believe and had a full spinal fusion at 12. I’m currently training to run my first marathon and have been practicing yoga for about a year. When I first started, it really hit me how I can’t do all of the poses like others could, but I don’t let that stop me from enjoying my practice.

I’m so excited to see a community for people like me. I just want to remind you all that you are so strong.

Faith

24, Chicago

Hey everyone, I'm Jaime. I'm 48 and have been on the scoliosis and spine saga journey since age 12 - Boston brace, childhood fusions at 13 and 14, and most recently a lumbar fusion this January with revision in July. I'm in Washington State, and I'm really glad to be here with people who understand what it's like to live with this much hardware.

Hi everyone!

I live in Northern California, and I got diagnosed with Scoliosis 3 years ago. I have mild-ish (I got an X-ray 3 years ago which showed mild scoliosis, but I believe it progressed in the last few years...). I am a current high school student, and not many people actually know that I have Scoliosis mostly due to the stigma around it that "bad posture causes scoliosis", but I started to incorporate life with scoliosis into my instagram account (@hs_kaur.md_dreams), to bring awareness to it and stop hiding a part of myself! 💗